Wednesday, June 26, 2013

Spinal Muscular Atrophy

Meet Shane, a 21 year old man with Spinal Muscular Atrophy diagnosed since 2 years old.

Imagine a life where your muscles are no longer controlled by your brain.
Imagine a life where your muscles shrink and gets weaker day by day.
Imagine losing the ability to walk, run, hop, jump.
Imagine inserting a nasal tube into your nose everyday before you sleep just so you won't die of respiratory muscle failure.
Imagine spending only 20 minutes to chew a mouthful.
Imagine requiring assistance for feeding.
Imagine requiring assistance for showering.

What would you do ? How would you react to it ?


I shall not elaborate further on that, and let the video walk you through it.
http://www.youtube.com/watch?v=NwZZZkrJycQ


Meanwhile, here is an afterthought for myself :
' Live as if everyday is the last day of your life. Try your best and be fearless.'

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